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Out of My Mind (The Out of My Mind Series) Paperback – May 1, 2012
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“A gutsy, candid, and compelling story. It speaks volumes.” —School Library Journal (starred review)
“Unflinching and realistic.” —KirkusReviews (starred review)
From award-winning author Sharon Draper comes a story that will forever change how we all look at anyone with a disability, perfect for fans of RJ Palacio’s Wonder.
Eleven-year-old Melody is not like most people. She can’t walk. She can’t talk. She can’t write. All because she has cerebral palsy. But she also has a photographic memory; she can remember every detail of everything she has ever experienced. She’s the smartest kid in her whole school, but NO ONE knows it. Most people—her teachers, her doctors, her classmates—dismiss her as mentally challenged because she can’t tell them otherwise. But Melody refuses to be defined by her disability. And she’s determined to let everyone know it…somehow.
- Print length320 pages
- LanguageEnglish
- Grade level5 - 6
- Lexile measure700L
- Dimensions5.13 x 0.9 x 7.63 inches
- PublisherAtheneum Books for Young Readers
- Publication dateMay 1, 2012
- ISBN-101416971718
- ISBN-13978-1416971719
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Editorial Reviews
Review
*Fifth-grader Melody has cerebral palsy, a condition that affects her body but not her mind. Although she is unable to walk, talk, or feed or care for herself, she can read, think, and feel. A brilliant person is trapped inside her body, determined to make her mark in the world in spite of her physical limitations. Draper knows of what she writes; her daughter, Wendy, has cerebral palsy, too. And although Melody is not Wendy, the authenticity of the story is obvious. Told in Melody's voice, this highly readable, compelling novel quickly establishes her determination and intelligence and the almost insurmountable challenges she faces. It also reveals her parents' and caretakers' courage in insisting that Melody be treated as the smart, perceptive child she is, and their perceptiveness in understanding how to help her, encourage her, and discourage self-pity from others. Thoughtless teachers, cruel classmates, Melody's unattractive clothes ("Mom seemed to be choosing them by how easy they'd be to get on me"), and bathroom issues threaten her spirit, yet the brave Melody shines through. Uplifting and upsetting, this is a book that defies age categorization, an easy enough read for upper-elementary students yet also a story that will enlighten and resonate with teens and adults. Similar to yet the antithesis of Terry Trueman's Stuck in Neutral (2000), this moving novel will make activists of us all. -"Booklist "STARRED REVIEW
Eleven-year-old Melody Brooks has a photographic memory, synesthesia, and cerebral palsy. She can't speak or feed herself, and her motor skills are limited to whatever her thumbs can manage. The neighbor woman who takes care of Melody while her parents work is determined that Melody will learn as much as possible, and she works tirelessly to expand the girl's vocabulary. Eventually, with the help of a communication device, Melody manages to show her teachers and classmates just how much she knows. The premise of Melody's cognitive skills being trapped in a minimally functioning body recalls Trueman's "Stuck in Neutral "(BCCB 6/00), and the theme retains its fascination; Draper's smooth style enhances the story, and there's a romantic element to the notion that Melody isn't simply capable but actually gifted. The drama is overplayed, though, with Melody's abilities implausibly superlative. Melody's school experiences are somewhat anachronistic, and her classmates are little more than a collection of cliches, from the special needs kids who are unfailingly kind and noble to the normal kids who are outspokenly rude. Draper is a master of melodrama, though, and Melody's story certainly doesn't lack that; she may not be a particularly believable character, but she's an interesting one, and her plight will do its work of making students think twice about their classmates, acquaintances, and siblings with special needs. -- "BULLETIN, "March 1, 2010
Melody Brooks, in a wheelchair and unable to speak, narrates this story about finding her voice. The first half of the book catalogues Melody's struggles--from her frustration with learning the same preschool lessons year after year to her inability to express a craving for a Big Mac. Draper, whose daughter has cerebral palsy, writes with authority, and the rage behind Melody's narrative is perfectly illustrated in scenes demonstrating the startling ignorance of many professionals (a doctor diagnoses Melody as "profoundly retarded"), teachers, and classmates. The lack of tension in the plot is resolved halfway through when Melody, at age 10, receives a talking computer, allowing her to "speak." Only those with hearts of stone won't blubber when Melody tells her parents "I love you" for the first time. Melody's off-the-charts smarts are revealed when she tests onto her school's quiz bowl team, and the story shifts to something closer to The View from Saturday than Stuck in Neutral. A horrific event at the end nearly plunges the story into melodrama and steers the spotlight away from Melody's determination, which otherwise drives the story. Ages 10-up. (Mar.) -"Publishers Weekly"
"Like Stephen Hawking, who becomes her hero, Melody discovers that her inner strength and intelligence are more reliable than most of the humans around her. She becomes an activist for herself, even as Draper challenges those who read her story to become activists for those who are different." -The Columbus Dispatch
This powerful story by a two-time Coretta Scott King winner offers a wrenching insight into so many vital lives that the able-bodied overlook. If there's only one book teens and parents (and everyone else) can read this year, "Out of My Mind" should be it. --The Denver Post
Unflinching and realistic...Rich in details of both the essential normalcy and the difficulties of a young person with cerebral palsy. -Kirkus STARRED REVIEW
About the Author
Product details
- Publisher : Atheneum Books for Young Readers; Reprint edition (May 1, 2012)
- Language : English
- Paperback : 320 pages
- ISBN-10 : 1416971718
- ISBN-13 : 978-1416971719
- Reading age : 9+ years, from customers
- Lexile measure : 700L
- Grade level : 5 - 6
- Item Weight : 8.2 ounces
- Dimensions : 5.13 x 0.9 x 7.63 inches
- Best Sellers Rank: #2,043 in Books (See Top 100 in Books)
- Customer Reviews:
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About the author
Sharon Draper is a two-time Coretta Scott King Award-winning author, most recently for Copper Sun, and previously for Forged by Fire. She's also the recipient of the Coretta Scott King/John Steptoe Author Award for New Talent for Tears of a Tiger and the Coretta Scott King Author Honor for The Battle of Jericho and November Blues. Her other books include Romiette and Julio, Darkness Before Dawn, and Double Dutch. She lives in Cincinnati, Ohio, where she taught high school English for twenty-five years. She's a popular conference speaker, addressing educational and literary groups both nationally and internationally.
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"Out of My Mind" is the story of a little girl who just wants to be able to be heard and seen. She has spastic quadriplegia and cerebral palsy, but a photographic memory. She remembers everything that she has ever heard or seen, but is able to say nothing. I would ask you to take a moment and contemplate what it would be like to be in that position. She is treated as a baby, an invalid, someone stupid and incompetent because she looses control of her muscles and can't behave as a "normal" child. Can you imagine having above average intelligence and memory, but everyone treats you as if you have the mental capacity of an 18 month old... and no way to correct them?
This is the story of how she was able to develop the skills and be given the tools to make her voice heard. It is also a coming-of-age story. It's the story of her commentary on how people treat her, and her experiences being in "special" education classes, how she is able to see the beauty and wisdom in her classmates that the rest of the school has "thrown away" in the dingiest classrooms in the corner of the school. It's also the story of a 5th grade little girl's desire to be accepted just as she is.
As someone who commonly works with TBIs, it's also a reminder of the proverbial "don't judge a book by its cover". I may be working with someone who is completely unresponsive, but it's impossible to know how much is actually being understood and comprehended. I have had coworkers who either treat unresponsive patients like nothing more than dolls or like idiots, and it always offends me.
While this is a young adult book, it is definitely a book also important for adults to read. I would read this with an elementary-aged school child, but I would also read it with an adult group. It's a fast read - written as though by a very intelligent 5th grader - but the message is much more complex and powerful.
You might know or be related to a special needs child or grownup. Then again, perhaps you don't often think about special needs people because they're "invisible" to society in general, or perhaps you look away when they pass because you don't want them to think you are staring, or perhaps you'd rather not think about it at all because you feel all creeped out. Maybe if you knew that they're actually just like anyone else, you'd feel better. Here's an eloquent peek inside just such a life.
First, let me say that I concur entirely with the researchers who say that "spoilers" do not spoil a story for most skilled readers, so I'm not going to fret about leaving behind clues to the events in this tale. On the other hand, you can get a good synopsis from just about every other review, so I won't be summarizing the story. I want to address instead the value of what you take away from the tale. From here on, *spoiler alert* for those who worry about such things.
The writing is smooth and funny, and the prose is cadenced, so readers who are accustomed to the plod-plod-thump of potboilers may be pleasantly surprised. The story is in intimate first person, and for once the reader is plunked into the mind of someone who is locked into a malfunctioning physical prison. She has no way to show or tell others about her (high) abilities and must endure constant frustration at not even being able to tell someone when something is going wrong. She eventually gets a very rudimentary way (a picture board) to communicate, but it's useless for abstract thoughts and for anything that the pictures don't tell about. Her world opens up when she finally gets a Medi-Talker like Big Steve Hawking's so people realize that there are great thoughts inside her. (Whether they appreciate this is a mixed issue.)
I do agree with the quibble that others have brought up: nowadays, when someone needs and can use a "box of words," he or she is generally issued one by the time he or she starts school. It takes an awfully long time in this book for anyone to come up with the idea of giving one to the main character. I would've liked to hear some kind of excuse as to why this couldn't be afforded previously and how someone suddenly found a charity that would pay for it. That would've given us a reason for the long delay.
I can't agree with critics who say that the author shouldn't let "bad things" and "mean people" stand unchanged. That's realistic. There have been objections saying that the bullies don't change, and the other characters in the book don't change. I believe that in this type of story, a character arc of redemption doesn't have to happen for everybody. Bullies sometimes stay bullies and often get worse over time. Didn't these readers notice that the teacher had a change of heart from not believing that Melody could have done her own work on the quizzes to knowing that she got every answer right and putting her on the team? He redeemed himself somewhat in that way. But then he fell back into the swamp like a backslider when he didn't insist on holding the flight for her. (This is, alas, typical of people. Because they are not saints. They are but mortal flesh with souls that sometimes go with the most expedient answer instead of the right action.)
Bullies like Claire and Molly are out there. We have all come across them. Ditto for Rose, who is a pleaser, a classic "I want everyone to like me" type who is not sincere about her "friendship" pose and reveals her true colors in the end. Melody's reaction of standing up for herself at the end of the novel was totally appropriate, and THAT was the lesson we were to take away--standing up for what's right. Not a pretend lesson of sweetness and light that would lie to us and tell us that all bullies turn into friends and people always repent and are redeemed. Sometimes the apology you get is too little and too late.
After seeing the reviews that bemoaned the "awful things at the end of the book," I feared that it meant the dog or a person might die; worry not, however, because everyone lives. I want to tell you that in advance because it SLAYS me when things like that happen, especially for egregious reasons. I like to know going in that no pets or grandparents or children were zapped in the course of the book. Yes, a crisis takes place, but it's ultimately OK. The incident is meant to show that Melody still faces challenges in communication, even though things are much better. And that people who are angry and in a hurry can make awful mistakes. Life is like that. I have defended similar plot choices in more than one of my published novels because even though people in publishing said they wanted YA fiction to always show that there's a second chance, I believe that sometimes there is not, and we must find ways to cope and assign meaning anyway. Sometimes the cookie just crumbles, despite our best efforts.
Still, the heroine's dream is crushed because of silly middle school posturing, and she can't communicate with her mother at a critical moment (although WHY her box of words was ever not in her hands I don't know--I know of one student with such a device, and it NEVER leaves her side, even to ride in the car!) This is life. These things happen, and we have to cope and find the meaning in the events and figure out how to do it differently next time, if we can.
So for those who claim that it's too difficult an ending to inflict on young readers--hey, this is LIFE and that is the sort of thing that happens. I can totally believe that they "accidentally" left her behind so they wouldn't have "the retard" (a term one of the bullies actually uses! If anyone wants to get outraged, get outraged about that pejorative term!) on their team. The other students were not happy about the extra attention from reporters that focused on Melody. They didn't want her at their breakfast because she couldn't feed herself and they thought it unsightly, no doubt--and when the opportunity arose to leave before planes were grounded, they skipped out on her. I can see this happening.
As for the sister being hurt--well, the mother was angry and impatient and having to do something she didn't want to do, and so she wouldn't check out WHY Melody was upset and trying to tell her something. People are just LIKE that. The lesson is that we should avoid this sort of acting in anger. It would be nice if I could learn that myself.
People have complained that the book is ageist or too "mean." I think that to invoke political correctness (always showing people of all ages being all-diversity-loving and so forth) is to dumb down a work of realistic fiction. You really have to hunt to find instances of the young being shown as "nicer" than the old here--especially since the caregiver who finally gets Melody a box of words is an older woman. Also, the author is African American, yet she gives no indication as to the races of the various characters. Color-blindness here is a GOOD thing and should be lauded.
I sort of wish that the title could be different, especially because Andy Rooney has a book in print by that same title. It isn't really indicative to me of the book's content.
In summary, the pluses of the book far outweigh any quibbles that we may have. I think young readers NEED to be exposed to realistic endings. And to the possibility that appearances can be deceptive. Next time you see someone who appears to be "slow," "dumb," hampered, or whatever . . . well, it may be decieving. You don't know what difficulties and hurts others may have. Walk a mile in someone else's shoes today, or roll a few yards in their adaptive device, and THEN tell me you don't understand . . . I think you'll start to understand.
When I tell you the emotional roller coaster I went through with a preteen book. 😦
It’s beautiful, wonderful, and I can’t wait to read the next one.
Top reviews from other countries
Melody was born with cerebral palsy. She cannot stand. When she sits, she has to be strapped to her chair to prevent her from tumbling down. She has problems chewing and swallowing food or even drinking water. And she cannot speak. When she tries to talk, “the words explode in her brain, but all that comes out are meaningless sounds and squeaks.”
But Melody’s brain has developed normally. In fact, her intelligence is well above average and she is always eager to learn. She is also blessed with a photographic memory. Her most painful problem is that she has no way of communicating her knowledge, thoughts or emotions to anyone. As she writes, “I can say “uh” and “ah” pretty clearly, and, if I concentrate, sometimes I can squeeze out a “buh” or a “huh.” But that’s it.”
Very few things can be more frustrating than this inability to express or communicate. But even her frustration she cannot express! When I read some of her passages describing how she needed to communicate but even someone like her mother who was one person who came closest to understanding her, would often fail to understand, I was reminded of a poem- The Eve of St Agnes by John Keats in which he wrote:
“No uttered syllable, or, woe betide!
But to her heart, her heart was voluble,
Paining with eloquence her balmy side;
As though a tongueless nightingale should swell
Her throat in vain, and die, heart-stifled, in her dell.”
When Melody’s helplessness overwhelms her, her arms and legs get all tight and “lash out like tree limbs in a storm.” She begins to screech and scream and jerk. She writes: “These things—I call them my “tornado explosions”—are pieces of me. All the stuff that does not work gets balled up and hyped up. I can’t stop, even though I want to, even though I know I’m freaking people out. I lose myself. It can get kinda ugly.”
Melody does go to school. But there is a class for special needs children and she sits there. Feeling miserable because often she is treated as an imbecile because she drools, needs to be taken to the toilet by an attendant and doesn’t speak or even raise her hand.
A teacher joins the school who introduces the concept of “inclusive periods” where for some sessions she sits in the same class as normal needs children. That is not an unmixed blessing either.
As Melody writes, “But “inclusion” doesn’t mean I’m included in everything. I usually sit in the back of the room, going crazy because I know answers to things and can’t tell anybody. “What’s the definition of the word ‘dignity’?” one of my teachers asked a few days ago. Of course I knew, so I raised my hand, but the teacher didn’t notice the small movement I’m able to make. And even if she were to call on me, what then? I can’t very well yell out the answers. It’s really frustrating.”
Because Melody does not speak, others just presume that she has nothing to say. As her classmate Claire once said, “I’m not trying to be mean—honest—but it just never occurred to me that Melody had thoughts in her head.”
Many of us would have come across special needs people. While we do feel sympathy for them, I realised after reading this book that what such people need most is not our sympathy or even kindness; they need to be treated as just another person. As Melody’s mother once says, “A person is so much more than the name of a diagnosis on a chart!”
No person’s illness should be treated as her identity.
It’s a sad story but the book is very readable and also very educative.
I LOVED this story! It made me feel all kinds of things. I was angry, happy, snappy, sad and really frustrated. Melody is such an amazing and relate-able little girl.
And oh boy, kids can be so mean and teachers can be so dumb. Overall: this book took me by surprise. I didn't expect to love it so much. It's definitely one of my favorite books.